Connecting to Cure Crohn's and Colitis

Connecting to Cure Crohn's and Colitis Together we can build a community around our shared goal of supporting patients and funding research for Crohn's Disease and Ulcerative Colitis.
Connecting to Cure Crohn’s and Colitis, Inc. (“CtoC”) is a California nonprofit public benefit corporation, which is in the process of applying to the IRS for federal tax-exempt status under Section 501(c)(3).  Although the outcome cannot be not guaranteed, contributions made to CtoC while our application is pending but prior to IRS recognition of 501(c)(3) status would qualify as retroactively tax-deductible for federal income tax purposes to the fullest extent of the law.  Please consult your tax advisor for specific advice regarding the tax-deductibility of charitable contributions.

Created by Dana Zatulove and Stacy Dylan, our non profit will focus on brining people together to organize events fundraise to find a cure for Crohn's Disease and Ulcerative Colitis. Our Signature event is Rock the Night, featuring music, silent auction, food, drink and fun!

Mission: Connecting to Cure Crohn's and Colitis unites the IBD community to promote public awareness and to help fund research to find a cure for Crohn's and Colitis.

We are so proud of #teamctoc, our LA Marathon team. We are close to our 50K and the race is less than 2 week away!🏃‍♀️🏃T...
02/24/2020

We are so proud of #teamctoc, our LA Marathon team. We are close to our 50K and the race is less than 2 week away!🏃‍♀️🏃

Thank you to everyone that who donated and supported our mission to help those struggling with IBD.

If you would like to make a donation, please click here: https://team-ctoc-la-marathon-2020.everydayhero.do/

It’s #feedingtubeawarenessweek. Tube feeding is a way for your body to get what it needs through liquid nutrition. There...
02/14/2020

It’s #feedingtubeawarenessweek. Tube feeding is a way for your body to get what it needs through liquid nutrition. There are hundreds of medical conditions that may require kids or adults to tube feed and certainly IBD is one of them. Tube feeding can be lifesaving for some and is used for a variety of issues both short term and long term. Some people with IBD will need tube feeding. Sometimes they can’t eat and/or absorb enough calories from food, so they use formula to add more calories to their diet. Sometimes people can’t orally drink enough formula so getting the formula into them is easier via a tube. The surgically placed tubes are G or J tubes which are buttons that deliver the formula either into your stomach or intestine. There are also NG tubes that are placed through the nose and then go down the esophagus into the stomach, so the formula is delivered that way. For each type of tube, a health company can supply all the things you need, including a pump, bags, syringes and more. Lowell used an NG tube for years starting at age 10 (his age in this picture) and he currently has a G tube. He has also had Picc lines and ports and the feeding tube is preferable for his particular issues right now. He has gone through periods of just having formula for all his caloric needs, and no food. Currently he can eat food but supplements with formula through his G tube to get more calories and nutrition as he has had so much bowel removed that it is harder for him to absorb nutrients. Click our bio to read what I wrote 2 1/2 years ago about when he got his first G tube, and something went wrong and the surgery had to be redone 2 days later. After it was fixed, he began to gain weight but unfortunately that tube was removed 9 months later due to a pain issue we could not solve. He now has another G tube that he got last August. So far it is going okay and he is gaining weight slowly and getting adequate nutrition.
Everyone is different and some people really can't eat due to various digestive disease and we need more awareness about these issues.
#gtube #ngtube #crohns #ibd #digestiveissues #enteralnutrition

It’s #feedingtubeawarenessweek. Tube feeding is a way for your body to get what it needs through liquid nutrition. There...
02/14/2020

It’s #feedingtubeawarenessweek. Tube feeding is a way for your body to get what it needs through liquid nutrition. There are hundreds of medical conditions that may require kids or adults to tube feed and certainly IBD is one of them. Tube feeding can be lifesaving for some and is used for a variety of issues both short term and long term. Some people with IBD will need tube feeding. Sometimes they can’t eat and/or absorb enough calories from food, so they use formula to add more calories to their diet. Sometimes people can’t orally drink enough formula so getting the formula into them is easier via a tube. The surgically placed tubes are G or J tubes which are buttons that deliver the formula either into your stomach or intestine. There are also NG tubes that are placed through the nose and then go down the esophagus into the stomach, so the formula is delivered that way. For each type of tube, a health company can supply all the things you need, including a pump, bags, syringes and more. Lowell used an NG tube for years starting at age 10 (his age in this picture) and he currently has a G tube. He has also had Picc lines and ports and the feeding tube is preferable for his particular issues right now. He has gone through periods of just having formula for all his caloric needs, and no food. Currently he can eat food but supplements with formula through his G tube to get more calories and nutrition as he has had so much bowel removed that it is harder for him to absorb nutrients. Click our bio to read what I wrote 2 1/2 years ago about when he got his first G tube, and something went wrong and the surgery had to be redone 2 days later. After it was fixed, he began to gain weight but unfortunately that tube was removed 9 months later due to a pain issue we could not solve. He now has another G tube that he got last August. So far it is going okay and he is gaining weight slowly and getting adequate nutrition.

Everyone is different and some people really can't eat due to various digestive disease and we need more awareness about these issues. Share your feeding tube story if you'd like, we would love to hear from you about your child or yourself. We are in this together.

https://medium.com/ibd-and-digestive-diseases-a-shared-blog/this-is-a-long-blog-post-i-wrote-very-early-this-morning-read-on-to-find-out-why-974e88077966

For more information about feeding tubes
https://www.feedingtubeawarenessweek.org

#gtube #ngtube #crohns #ibd #digestiveissues #enteralnutrition

It’s ok to take a break!So come join our support group for IBD patients and their caregivers today.Our community and fac...
02/13/2020

It’s ok to take a break!

So come join our support group for IBD patients and their caregivers today.

Our community and facilitators can help you cope with your IBD.

Remember, you are not alone.💚

Our Free Yoga Class is this Saturday at 11AM at @yogarajwla !Relax. Unwind. Shake things up 🧘‍♀️🧘Patients, their friends...
02/12/2020

Our Free Yoga Class is this Saturday at
11AM at @yogarajwla !

Relax. Unwind. Shake things up 🧘‍♀️🧘Patients, their friends and
caregivers are all welcome.

Please RSVP to [email protected] or DM us for more info. 📩

Love our C to C Team! Last Sunday they ran 10 miles, and our full marathoners had 20 miles on the schedule-the longest r...
02/11/2020

Love our C to C Team! Last Sunday they ran 10 miles, and our full marathoners had 20 miles on the schedule-the longest run yet. One more long run this weekend before the taper. Four weeks till race day. We have the best team and they are all killing it in the fundraising department. They have raised over 36K toward our 50K goal! #teamctoc #connect #race #cure

https://team-ctoc-la-marathon-2020.everydayhero.do

The burden of getting medications approved for their patients falls on the healthcare provider or doctor and the "system...
02/04/2020
‘The system is broken’ for IBD insurance denials, appeals

The burden of getting medications approved for their patients falls on the healthcare provider or doctor and the "system is broken", according to David T. Rubin, MD, of the University of Chicago.

Check out this article, definitely worth the read.

https://www.healio.com/gastroenterology/inflammatory-bowel-disease/news/online/%7Bb6dcaee4-78fc-40b8-a30c-50e196895e5b%7D/the-system-is-broken-for-ibd-insurance-denials-appeals

AUSTIN, In a cycle of physician prescriptions, payer denials and repeated appeals, gastroenterologists often become advocates for their patients, according to a presenter at the Crohn’s and Colitis Congress.“I’m not anti-payer in many ways. I’m anti-medically irresponsible ma...

The role of caregivers and how taking care of a loved one impacts them is receiving more attention which is a good thing...
01/30/2020
There's now a hotline specifically for caregivers

The role of caregivers and how taking care of a loved one impacts them is receiving more attention which is a good thing. Here is a hotline caregivers can call to get support. It is sponsored by the Caregiver Action Network.

https://www.wxyz.com/news/national/theres-now-a-hotline-specifically-for-caregivers

Depression. Exhaustion. Burnout. Stress. Those are just some of the words people are using to describe their experiences as caregivers.

It’s winter and we all want comforting food! 🥘-Life is busy, simple meals that are warming, healthy and that you can pre...
01/28/2020

It’s winter and we all want comforting food! 🥘
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Life is busy, simple meals that are warming, healthy and that you can prepare ahead are really ideal.
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Check out what co-founder Stacy Dylan makes and click on the link in our profile to see more about this recipe on her blog!
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We promise you won’t be disappointed, what’s YOUR favorite winter comfort food? 🤤

https://medium.com/@stacyjdylan/its-winter-and-we-all-want-comforting-food-54bfd73f73b2

LaGrippe Research, a market research firm specializing in healthcare, is looking to talk to individuals diagnosed with U...
01/13/2020
Ulcerative Colitis Patient Journey

LaGrippe Research, a market research firm specializing in healthcare, is looking to talk to individuals diagnosed with Ulcerative Colitis to gain some insight and feedback regarding Ulcerative Colitis. We are not selling anything and the information we gather will remain confidential and be used for research purposes only.

This an excellent opportunity for those looking to be proactive about their Ulcerative Colitis and help contribute to research. This market research study will either be a 5-day, 20 minutes a day online board starting January 13th or a 90-minute in-person interview in the Boston area. If you qualify and complete the study, you will receive a $250 incentive check in the mail once the project is complete.

Please answer the prequalification questions here: https://www.surveymonkey.com/r/L8K5T8C

Feel free to contact Marcia at 224-475-8771 or [email protected] to answer questions or discuss the same prequalifying questions over the phone. Thank you for your consideration!

Take this survey powered by surveymonkey.com. Create your own surveys for free.

Calling all Yoga lovers 🧘‍♂️🧘‍♀️.-Whether you’re a seasoned Yogi or you want to try it for the first time, this is the p...
01/12/2020

Calling all Yoga lovers 🧘‍♂️🧘‍♀️.
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Whether you’re a seasoned Yogi or you want to try it for the first time, this is the perfect opportunity.
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We will be offering free yoga classes in January, February and March, so be sure to tell a friend and RSVP for this free event. Oh yes, did we mention classes are free for people with IBD and their families/caregivers.
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DM us to RSVP!

Hey everyone,Hope your 2020 is off to a great start! We would like to invite you to our first support group of the year....
01/08/2020

Hey everyone,

Hope your 2020 is off to a great start!

We would like to invite you to our first support group of the year. Our community and facilitators can help you cope with your IBD.

Remember, you’re not alone.

Our Los Angeles Marathon Teammate Dori is having a Bingo fundraiser on Wednesday Night from 6-9 PM at the Blending Lab. ...
01/06/2020

Our Los Angeles Marathon Teammate Dori is having a Bingo fundraiser on Wednesday Night from 6-9 PM at the Blending Lab. The cost is $25 and it will be in the main room when you walk in.
https://thewineblendinglab.com
7948 W 3rd Street
Los Angeles, CA

There will be prizes and Wine and all proceeds go to Connecting to Cure Crohn’s and Colitis!

Before the year is over, we would like to thank everyone that contributed to our cause this 2019, wether you attended on...
01/01/2020

Before the year is over, we would like to thank everyone that contributed to our cause this 2019, wether you attended one of our events, donated money, volunteered your time, ran a marathon or simply shared one of our posts, everything counted and we are very grateful to allow us to continue helping those with IBD.

We wish you and yours a happy new year, and hope that this new year is full of happiness! ❤️🍾

Check out this newsletter by our friends from Gut It Out Foundation Pitcher Jake Diekman's foundation. He has UC, had J ...
12/24/2019
GUT IT OUT NEWSLETTER | DECEMBER 2019

Check out this newsletter by our friends from Gut It Out Foundation Pitcher Jake Diekman's foundation. He has UC, had J Pouch surgery and returned to the mound. He became an advocate and supporter for others living with IBD sharing his story and providing a realistic view of an athlete living with #IBD

ENTER TO WIN OUR GUT IT OUT GIFT BASKET!

IBD Awareness Week: 5 Facts Everyone Should Know.This #IBDawareness week take a second to learn more about these invisib...
12/05/2019

IBD Awareness Week: 5 Facts Everyone Should Know.

This #IBDawareness week take a second to learn more about these invisible diseases and how they affect so many people around us.

•About 3 million people have been diagnosed with it in the US.
•Some symptoms include fever, loss of appetite, diarrhea, rectal bleeding, abdominal pain, fatigue, etc.
•Most cases are diagnosed within the ages 15-35 but cases have appeared at any age.
•About 70% of patients require surgery.
•The total anual healthcare cost for IBD patients is in between $11 billion to $28 billion in the US.

If you would like to get involved in this fight please head over to our link in bio and make a donation today, or DM us for ways to volunteer.

You won't find a better Black Friday deal than this one:What if we told you, that by purchasing absolutely anything thro...
11/29/2019

You won't find a better Black Friday deal than this one:

What if we told you, that by purchasing absolutely anything through AmazonSmile, Amazon would donate 0.5% of your purchase to IBD patients and their families? Well thats exactly the case, so head on over and get your holiday shopping started while you help those dealing with IBD diseases.

Click this link for easy access and shop away!

https://smile.amazon.com/

Our friend Ani Rosen. Read her story!
11/26/2019

Our friend Ani Rosen. Read her story!

⭐️Teammate Tuesday⭐️
Today’s AVC #TeammateoftheWeek is Ani from Los Angeles, CA! Nominated by her loving family and our friends @connectingtocure, Ani is a freshman in college and was diagnosed with Crohn’s in 2015. Following a summer of accelerating symptoms, a colonoscopy and pill cam study, the diagnosis was quickly confirmed. The disease came on fast and furious and took Ani down. She had lost 20 pounds and could not go to school or dance for three entire months. As a 12-year competitive dancer who trained 25 hours a week, and drove 100 miles a day for her training, it seemed as if her life had stopped. After months in bed, she realized that she needed to accept the cards that were dealt to her, and not let her disease define her. She returned to school, albeit slowly at first, and began attempting the drive to Anaheim to rejoin the dance team that had supported her during her difficult months and resume her training. Though the simple act of walking up a flight of stairs had become a challenge, Ani was committed to becoming again the powerful athlete she had been. And she did it. But in the spring of her sophomore year, she had her first flare and was hospitalized three weeks prior to the biggest competition of her life, The Dance Worlds in Orlando, Florida. Determined to go, and not really well enough, she travelled with her team. Despite her tentative state, she dug deep within her, rose to the occasion, and helped her team place third in the world. Never had she been so proud or even so surprised by her own mental and physical tenacity. She continued her good health and growth as a student and dancer for almost a full year before she was hospitalized for acute Appendicitis. The doctors did not want to do surgery due to her Crohn’s Disease so she had to stay in the hospital for five days on heavy IV antibiotics to clear the infected appendix. Another setback. Once again, she regained her strength, and soon found herself immersed in the arduous college application process of junior and senior year. Ani’s resiliency, hard-work and dedication to all of her crafts once again paid off as she was both accepted to her dream college, UCLA, as a dance major and also made the highly competitive UCLA Dance Team. As the only freshman rookie on the dance team, Ani is reunited with her sister Sydney, who is a senior and one of the Captains of the UCLA Dance Team. Together with their team, they represent the Bruins at the Rose Bowl and Pauley Pavilion and are student-athlete ambassadors to the university. Now thriving at UCLA and despite all of the obstacles that Crohn’s has thrown at her, (including an infection in her colon the summer before she started) Ani continues to say “No Thank You” to letting her disease stop her from being her best self; a student, athlete, dancer, daughter, sister, grand-daughter, sorority sister, friend, dreamer and number one fan of her dog, Cali.We are cheering for you, Ani! 💃🏼🎉🌞
Have an athlete you would like to nominate for our #TeammateoftheWeek? Send us a brief bio and photos to [email protected]!

Happy Friday!We would like to invite everyone to join us for marathon training this Sunday at Clover Park in Santa Monic...
11/22/2019

Happy Friday!

We would like to invite everyone to join us for marathon training this Sunday at Clover Park in Santa Monica, 7:30 am.
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Bring water and bring a friend, everyone is welcome to come sweat those weekend meals together.

See y’all there!

Hi everyone!Did you know that when you shop for the holidays at smile.amazon.com, AmazonSmile donates to Connecting to C...
11/20/2019

Hi everyone!

Did you know that when you shop for the holidays at smile.amazon.com, AmazonSmile donates to Connecting to Cure Crohn's and Colitis?🤗

This year, we have partnered with Amazon Smiles and everytime you purchase something using our link to Amazon we will be receiving a donation from them to continue supporting research and awareness for IBD.

So be sure to click this link https://smile.amazon.com/gp/f.html?C=JY11A2HZ6P5O&K=K5VC05RFG7LX&M=urn:rtn:msg:20191029140445dd81f1b2c6bf412db208121713a0p0na&R=1BPYUFGEQ1PQ1&T=C&U=http%3A%2F%2Fsmile.amazon.com%2Fch%2F46-0767240&H=OMLCXMC1JLAOIMEHO5GV5KZ8SKKA

before you shop at Amazon and help us raise money while you shop amazing deals. 🙏

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We offer a community of support for people and families with IBD and are raising money to help fight Crohn’s and colitis.

Connecting to Cure Crohn's and Colitis unites the IBD community to promote public awareness about Crohn’s and colitis, to fund research for new treatments and cures, and to support patients and their families living with these chronic illnesses.

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Check out my funny rap video about living with Crohn’s Disease. Illest MC by Lil Crohn$y!
Dear all, please let me share this important study invitation from EFFCA and ECCO: There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it. We are looking for many people with IBD who can provide us their views about surgery, by completing a survey that lasts about 15 minutes. We need some help to reach out potential participants, to spread the invitation across the IBD community. Could you please help us, by completing the survey, but also sharing this message in the social media? Here is the link to the survey: https://unicatt.eu.qualtrics.com/jfe/form/SV_b8hTPkEheX9XoRT Thank you in advance! EFCCA & ECCO IBD SU(rgery)PER(ception) Study Group
Hello! My name is Kaleigh, and I have many loved ones living with Crohn's and as you may know it is so painful to watch. This video shows the powerful story Tara, and offers an alternative option to prescription medication! Please watch and share, as this helped my family tremendously.
Hello I work with a research company and we're conducting a phone survey with individuals in the U.S. who have Ulcerative Colitis. We want to learn more about the health conditon and your experiences. For 25 minutes of your time, we will pay you $25. Please feel free to contact me at (732) 543-7848 ext. 8998 or message me your contact info and I will give you a call. If I am out of the office, please leave me a detailed message with your name and contact info and I will return your call. ​Thank you!
Hi, everyone! I wanted to share this amazing video of holistic dentist, Dr. Winick, who we interviewed for our wellness media company, WellBe. He tells us about how he healed the majority of his Crohn's symptoms and how that extended into his dentistry practice. We really want to spread the video as much as possible so people know about the connection between dental health and overall health - but also to encourage seeing an integrative dentist!