Cystic Fibrosis Foundation - Los Angeles

Cystic Fibrosis Foundation - Los Angeles Welcome to the official page of the Los Angeles Chapter!
The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF. Cystic Fibrosis Foundation - Los Angeles Chapter 4929 Wilshire Blvd. Suite 760 Los Angeles, CA, 90010

About CF: Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

Mission: The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Will you be our Valentine? Show people living with cystic fibrosis the love and join the 65 Roses Club today! Your month...
02/15/2020

Will you be our Valentine? Show people living with cystic fibrosis the love and join the 65 Roses Club today! Your monthly gift can help to accelerate ongoing research, support programs that help the CF community, and so much more. fightcf.cff.org/losangeles-anf

Candy hearts can’t even begin to express the gratitude we have for monthly donors! This Valentine’s Day join the 65 Rose...
02/14/2020

Candy hearts can’t even begin to express the gratitude we have for monthly donors! This Valentine’s Day join the 65 Roses Club and make a difference for people living with cystic fibrosis. fightcf.cff.org/losangeles-anf

Celebrate Valentine's Day 💌 by making a self-donation of $20 (or more) and this one-of-a kind Great Strides tote will be...
02/14/2020

Celebrate Valentine's Day 💌 by making a self-donation of $20 (or more) and this one-of-a kind Great Strides tote will be mailed to you!

Donations must be made TODAY 2/14. Happy Valentine's Day! 😍

www.cff.org/greatstrides

02/10/2020
Thank you Teams!

Thanks to all the Team Leaders that have registered their team so far for Great Strides! We have 51 teams ready to spread awareness and fundraise for CF.💜

Register your team today and we hope to see you at Great Strides!
www.cff.org/greatstrides

Great Strides Team Sign on Week has kicked off! We are 51% to our goal of having 65 teams registered by Feb. 7th! Help u...
02/04/2020

Great Strides Team Sign on Week has kicked off!

We are 51% to our goal of having 65 teams registered by Feb. 7th! Help us add tomorrows for people living with CF and you’re Great Strides crew will dye their hair purple for a week...or longer!

Register your team today! www.cff.org/greatstrides

Thank you to everyone that joined us on Saturday for the LA Kings Vs. Ducks. Even though we took the L, we were winners ...
02/03/2020

Thank you to everyone that joined us on Saturday for the LA Kings Vs. Ducks. Even though we took the L, we were winners with the amazing CF community that came out to support the Cystic Fibrosis Foundation and Audrey as the Bench Captain for the LA Kings. 🏒💜🖤

Our "Adventures in SoCal" wall is filling up fast! We have 30 teams registered so far. Help us keep up the momentum by r...
01/31/2020

Our "Adventures in SoCal" wall is filling up fast! We have 30 teams registered so far. Help us keep up the momentum by registering your team today and don’t forget - if we get 65 teams registered by the week of Feb 3rd, the Great Strides crew will wear purple hair for a week...or longer!

Register your team today! cff.org/greatstrides

Today is Tomorrow's Leaders Day or 1-2-3 Join Me! Day. Join one of the most dedicated groups of young professionals maki...
01/23/2020

Today is Tomorrow's Leaders Day or 1-2-3 Join Me! Day. Join one of the most dedicated groups of young professionals making a difference in the fight against cystic fibrosis.

Follow us on Instagram,@cff_losangeles as you meet three individuals that are members of the LA Chapter, Tomorrow's Leaders program.

https://www.cff.org/Get-Involved/Give-to-the-Cause/Tomorrows-Leaders/

Why join Community Voice? Now more than 1,000 voices strong, members are helping to shape CF programs, research, and ini...
01/22/2020

Why join Community Voice? Now more than 1,000 voices strong, members are helping to shape CF programs, research, and initiatives that matter most to them.

Make your voice heard, and sign up today: https://on.cff.org/CommunityVoiceSignUp

Why join Community Voice? Now more than 1,000 voices strong, members are helping to shape CF programs, research, and initiatives that matter most to them.

Make your voice heard, and sign up today: https://on.cff.org/CommunityVoiceSignUp

It's Great Strides sign on week! Register your 2020 team by Feb 3rd. If we get 65 teams registered by then your GS Crew ...
01/21/2020

It's Great Strides sign on week! Register your 2020 team by Feb 3rd. If we get 65 teams registered by then your GS Crew will dye their hair purple! 💜

cff.org/greatstrides

01/15/2020
Adventures in SoCal

Forge new roads, find new adventures and register for Great Strides! We are on the path to finding a cure for CF.

cff.org/greatstrides

The Foundation has provided funding to Calibr, the drug discovery and development arm of Scripps Research, to screen for...
01/14/2020
CF Foundation Awards Leading Research Organization Funding to Screen for Potential B. Cepacia Therapy

The Foundation has provided funding to Calibr, the drug discovery and development arm of Scripps Research, to screen for a compound that could be used to treat infections caused by B. cepacia complex.

With this grant, scientists will screen a library of 13,000 molecules that have been used in developing drugs for other diseases to determine whether any of the molecules could be used as an antimicrobial to kill any of the 22 bacterial species of B. cepacia complex.

On January 9th at  6 P.M. the UCLA Infectious Disease Division presents Phage Therapy in the Fight against Superbugs boo...
01/08/2020

On January 9th at 6 P.M. the UCLA Infectious Disease Division presents Phage Therapy in the Fight against Superbugs book event at the David Geffen School of Medicine at UCLA (DGSOM) with presentations by Steffanie A. Strathdee PhD and Thomas Patterson PhD, the authors of The Perfect Predator, and Diane Shader Smith, the mother of the author of Salt in My Soul: An Unfinished Life.

The event will present Phage Therapy as a potential therapy for bacterial infections in CF patients. To find more event information, please visit our website.

**All attendees must RSVP via the event website **
https://www.phagetherapybookevent.com/

Today is the last day to make a gift to the Cystic Fibrosis Foundation in 2019! Before the clock strikes twelve, conside...
12/31/2019

Today is the last day to make a gift to the Cystic Fibrosis Foundation in 2019! Before the clock strikes twelve, consider making a gift to help make a difference for people with CF.

Free gift when you become a monthly donor! fightcf.cff.org/losangeles-anf

A cure for all people with cystic fibrosis – that’s our hope for the future. We are committed to making this hope a real...
12/27/2019

A cure for all people with cystic fibrosis – that’s our hope for the future. We are committed to making this hope a reality and will not rest until CF stands for Cure Found.

Give the gift of hope this holiday season, fightcf.cff.org/losangeles-anf

“I know that he will fight until he gets cured and that when he does get cured it will be a miracle.” Tytus Davenport, Levi’s Brother

We have come so far, but there is still work to do. Give the gift of hope and help make a difference for people with CF....
12/24/2019

We have come so far, but there is still work to do. Give the gift of hope and help make a difference for people with CF. Free gift when you become a monthly donor to the CF Foundation.

fightcf.cff.org/losangeles-anf

The approval of a highly effective triple-combination therapy and the announcement of a major commitment of research fun...
12/20/2019

The approval of a highly effective triple-combination therapy and the announcement of a major commitment of research funding helped make 2019 a transformative year for people with cystic fibrosis. But there is still critical work to be done to help all people living with the disease. Celebrate the progress we have and will continue to make by donating today!

fightcf.cff.org/losangeles-anf

“The best part of our year, for our entire family, however, was getting the news that Trikafta was approved by the FDA. The feeling of a thousand pounds on our shoulders lifted immediately.” Stacey Armato, Massi’s Mom

New episode of Tomorrow's Leaders podcast, check it out!
12/19/2019

New episode of Tomorrow's Leaders podcast, check it out!

On the latest episode of Breaking Through, Jon Norberg tells Kristen Brockman how his brother Ryan, who’s living with cystic fibrosis, has helped and inspired him. While Jon was traveling the globe as a highly ranked young tennis star, it was Ryan who kept him grounded back at home. Living his entire life with CF, Ryan couldn’t always do what his older brother could. And the way Jon saw it, if Ryan couldn’t do something, he would seize the opportunity and do it for the both of them. When his tennis career was coming to an end, Ryan helped Jon transition into a new chapter of his life. Listen to hear Jon’s advice on how to find a new passion when life serves you a topspin kick. https://on.cff.org/2PH7SYt

With any luck, by next year you'll be signed up as a Great Strides Team Leader! Register your team by Friday for a speci...
12/18/2019

With any luck, by next year you'll be signed up as a Great Strides Team Leader! Register your team by Friday for a special holiday gift!

www.cff.org/greatstrides

12/13/2019
Congrats!

Congratulations to these awesome teams who have already registered for our Great Strides 2020 walks! Get your team registered at www.cff.org/greatstrides by December 20th to get a very special holiday 🎁!

The LA Kings game for Cystic Fibrosis Foundation Day is Saturday, February 1st! Get your tickets today and join us for a...
12/13/2019

The LA Kings game for Cystic Fibrosis Foundation Day is Saturday, February 1st! Get your tickets today and join us for a fun and exciting game versus the Anaheim Ducks.

All tickets purchased through the link below will be sat together in our reserved group section.

Tickets start at $65 and are limited!

Full URL: lakings.com/CFF

Also, The Kings are Looking for a
Bench Captain!

The "Bench Captain" is an awesome experience where a child with CF between the ages of 6 and 12 gets to go down to the Event Level and get exclusive access to the players hall where he/she can watch the team take the ice for pregame warm ups from the Kings locker room.
Then, they will get to sit on the team’s bench and watch them warm up! This makes for an incredible opportunity for pictures and potential interaction with players as they get ready for the game. On top of all that they are then featured in a Jumbotron spotlight after warm ups. You must have purchased a ticket to the game to be considered as "Bench Captain".

Email, Natalie at [email protected] to submit a picture, short bio and why your child will want to be "Bench Captain". We will email you by December 28th or sooner if you are selected.
Questions?: [email protected] // 323-939-0758
.

It's the most wonderful time of the year! The 2020 Great Strides websites are open to register! Sign up your team in the...
12/11/2019

It's the most wonderful time of the year! The 2020 Great Strides websites are open to register! Sign up your team in the month of December and you will get a lovely holiday gift from the Great Strides crew!

www.cff.org/greatstrides

Julie Riedy first learned about cystic fibrosis in college when she met her future husband, Chad. On this month’s episod...
12/09/2019

Julie Riedy first learned about cystic fibrosis in college when she met her future husband, Chad. On this month’s episode of Breaking Through, Kristen Brockman chats with Julie about her involvement with the CF community, how she found a career as a teacher, her journey to having children, and more.
Listen today! https://on.cff.org/2DUvORq

10 year anniversary!
12/03/2019

10 year anniversary!

10 year anniversary!

For the Stremicks, family is everything. That’s why this #GivingTuesday, they are offering a $250,000 matching gift in h...
12/03/2019

For the Stremicks, family is everything. That’s why this #GivingTuesday, they are offering a $250,000 matching gift in honor of their granddaughter, Ella, a 14-year-old living with cystic fibrosis.

Your gift will go twice as far in supporting Ella and all people living with CF this #GivingTuesday. Give today: bit.ly/LAannualfund

There’s no substitute for talking to another person affected by cystic fibrosis. Connect with someone who “gets it” thro...
11/27/2019

There’s no substitute for talking to another person affected by cystic fibrosis. Connect with someone who “gets it” through CF Peer Connect to talk about topics like having a career, parenting, or growing older with CF. https://on.cff.org/CFPeerConnect

11/21/2019
Lori Corbin

Check out ABC7 Eyewitness News Food & Fitness Report Lori Corbin, Author of The 65 Warrior Project, Andy Lipman and 65 Roses Climb participants train for Saturday’s event at the iconic Rose Bowl Stadium. If you have not registered – there is still time!
Register today: http://fightcf.cff.org/65rosesclimb

https://www.facebook.com/ABC7Lori/videos/528639504351851/

Great fundraising and awareness efforts by Cystic Fibrosis Foundation - Los Angeles. Climb the Rose Bowl stadium stairs or drop into their cycle classes on 11/23/19 The ABC7 Circle of Health is below. Go CFWarriors!

11/21/2019
Cystic Fibrosis Foundation - Los Angeles

Thank you Andy for stopping by the LA Chapter office and sharing your CF story and your new book, The CF Warrior Project.

Q & A with Andy Lipman, author of The CF Warrior Project. Have a question for, Andy? Ask in the comments section.

11/21/2019

Q & A with Andy Lipman, author of The CF Warrior Project. Have a question for, Andy? Ask in the comments section.

11/20/2019
Lori Corbin

Thank you Lori Corbin for joining us yesterday at the Rose Bowl Stadium with Andy Lipman for the 65 Roses Climb at the Rose Bowl taking place on Saturday!

You can tune in tomorrow at 1pm to our Facebook live Q&A with Andy Lipman, author of The CF Warrior Project:65 Stories of Triumph Against Cystic Fibrosis.

AT THE ROSE BOWL! With @AndyLipman talking about the ‘65 roses climb’ event this Saturday at the Rose Bowl to raise money and awareness for cystic fibrosis. @CFF.LosAngeles

Today we were out training for Saturday’s 65 Roses Climb at the Rose Bowl. Join us as we step up for a cure and climb (o...
11/20/2019

Today we were out training for Saturday’s 65 Roses Climb at the Rose Bowl. Join us as we step up for a cure and climb (or spin) through the decades!

Hint..Hint..This year’s theme is "The Decades"!

Come dressed as your favorite era. Don’t miss out on this unique opportunity to hang out at the iconic Rose Bowl Stadium. Enjoy food, drinks, great entertainment, and prizes for top climbers and fundraisers!

Fightcf.cff.org/65rosesclimb

Save the date! Giving Tuesday is a day dedicated to supporting the causes you care about most. Help make a difference fo...
11/19/2019

Save the date! Giving Tuesday is a day dedicated to supporting the causes you care about most. Help make a difference for people living with cystic fibrosis on December 3.

fightcf.cff.org/losangeles-anf

2019 LA's Finest Walk the Purple Carpet!
11/13/2019

2019 LA's Finest Walk the Purple Carpet!

We deeply appreciate our 10th Annual 65 Roses Climb SPONSORS! Can't believe that the event is in two weeks! Register to ...
11/06/2019

We deeply appreciate our 10th Annual 65 Roses Climb SPONSORS!

Can't believe that the event is in two weeks! Register to Climb or Spin with us on November 23rd at the beautiful Rosebowl, Pasadena California.

http:fightcf.cff.org/65rosesclimb

11/06/2019

Nonsense and Rare Mutation Initiative event at the Luxe Hotel on Sunset. November 5th, 2019.

We are so excited to announce that the beautiful and talented, Lauren Zima will host LA's Finest on Friday! Join us for ...
11/04/2019

We are so excited to announce that the beautiful and talented, Lauren Zima will host LA's Finest on Friday! Join us for an amazing evening honoring our young professionals!

https://finest.cff.org/walkthepurplecarpet

Lauren is a celebrated journalist who is currently a correspondent for Entertainment Tonight. The Chicago native earned her master's degree in broadcast journalism and bachelor's degree in magazine journalism at the University of Missouri, and joined the ET family in 2015. She's interviewed countless stars, from Reese Witherspoon and Meryl Streep to Tom Hanks and Kim Kardashian, and created and hosted ET's popular Bachelor Nation recap series, Roses and Rosé.

Happy Halloween to all our friends. Have a wonderful evening tonight! Be safe out there.
10/31/2019

Happy Halloween to all our friends. Have a wonderful evening tonight! Be safe out there.

Is getting a transplant right for me? What is involved in the evaluation process? What is life like post-transplant? Wha...
10/31/2019

Is getting a transplant right for me? What is involved in the evaluation process? What is life like post-transplant?

Whatever their questions, people with CF, family members, and caregivers are invited to attend CF MiniCon: Transplant on Thursday, November 14, a free online virtual event to learn from clinician panelists about the transplant process, and connect with others in the cystic fibrosis community about all aspects of the journey.

Please note that CF MiniCon: Transplant is open to adults with CF, their family members, and caregivers ages 16 and older, and not open to chapter staff.

People with CF and their loved ones can sign up at cff.org/MiniCon

10/30/2019
| Magisto Video Editor

It’s not too late to sign up for the 65 Roses Climb! Whether you’re here for the workout, the friends, or the food & beverages – everyone is welcome to join us on Saturday, November 23rd!

Climb and/or Cycle with us for our 10 year anniversary!

Sign up TODAY! http://fightcf.cff.org/65rosesclimb

Created using Magisto video editor. Share your story with Magisto smart video maker.

Address

4929 Wilshire Blvd, Ste 760
Los Angeles, CA
90010

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Los Angeles Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Alerts

Be the first to know and let us send you an email when Cystic Fibrosis Foundation - Los Angeles posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Cystic Fibrosis Foundation - Los Angeles:

Videos

Category

Nearby event/venues


Comments

My name is Danielle and I am a student attending UCLA. I was so inspired by the individuals the I met at the Cystic Fibrosis Foundation's Great Strides Santa Monica event last year that I am creating a hypothetical product for individuals with CF in my entrepreneurial class. I am looking to have individuals with CF and/or family members answer a 4-minute online survey about their experiences to better illuminate possible inventions that may help those with CF live life more comfortably. I would greatly appreciate if you would take the time to answer this quick survey: https://goo.gl/forms/kMDPAMTDcikJVwkF2 Thank you!
Is there a branch in the Coachella Valley? Palm Springs- Rancho Mirage- Palm Desert - LaQuinta - Indio
Benefitting cystic fibrosis
A fiction suspense book that just came out a month ago has a character in it with CF that really brings awareness to CF affects families. The proceeds of the book are being donated to the CF Foundation. It's called The Naked Block and can be found on Amazon or Kindle. It's receiving 4 and 5-star reviews, so hope everyone gets a chance to order the book to raise money for CF and to enjoy a comical and suspenseful book at the same time.
Susan Thau, PhD., and I are offering a 1 day workshop, 9/23, in L.A. for couples whose child has a serious medical condition. We know from experience just how stressful this is on the couple. As psychologists who practice Emotionally Focused Therapy for Couples, we can teach couples the basics about emotional connection and health, and help them strengthen their bond with each other as an antidote to dealing with their child's condition. For more info, please contact me: [email protected] or (818) 888-7923.
My colleague and I are offering a 1 day workshop on 9/23 in L.A. for couples whose child has a serious medical condition. We know from personal experience the emotional stress of this situation. As psychologists who practice Emotionally Focused Therapy for couples, we want to help couples learn communication skills that strengthen their bond as an antidote to dealing with their child's condition. For more information, contact me at: [email protected] or (818) 888 7923
Why won't you enjoy the benefits of this great ancient therapy at home? Now you can with our new AirSalter https://www.facebook.com/healovation http://www.newsmax.com/…/salt-therapy…/2017/07/21/id/803040/