Cystic Fibrosis Foundation - Los Angeles

Cystic Fibrosis Foundation - Los Angeles Welcome to the official page of the Los Angeles Chapter! The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.

Cystic Fibrosis Foundation - Los Angeles Chapter 4929 Wilshire Blvd. Suite 760 Los Angeles, CA, 90010

Cystic Fibrosis Foundation - Los Angeles Chapter 4929 Wilshire Blvd. Suite 760 Los Angeles, CA, 90010

Mission: The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

11/24/2020
#GivingTuesday

Mark your calendar! Giving Tuesday on December 1st! This day is dedicated to supporting the causes you care about most. Save the date and help make a difference for people living with cystic fibrosis.

✨Take the stair challenge! Walk it, Snap it, and Share it!🏟 Step 1: We challenge you to pick TWO staircases in L.A. neig...
11/20/2020

✨Take the stair challenge! Walk it, Snap it, and Share it!

🏟 Step 1: We challenge you to pick TWO staircases in L.A. neighborhoods to visit over the next ten days!
🤳 Step 2: Take a selfie at each stair case.
📧 Step 3: Tag us at @cff_losangeles or www.facebook.com/cff.losangeles/

💪Registered participants will be entered into a drawing for the Secret Stairs book!

Challenge starts TODAY and ends 11/29.

It’s thankful Thursday and today we would like to thank the 65 Roses Climb Event Experience sponsor, Providence Little C...
11/19/2020

It’s thankful Thursday and today we would like to thank the 65 Roses Climb Event Experience sponsor, Providence Little Company of Mary. Thank you for supporting our mission!

It’s not too late to reserve your seat for the national Breath of Life Celebration, Together: Curing CF on November 19! ...
11/18/2020

It’s not too late to reserve your seat for the national Breath of Life Celebration, Together: Curing CF on November 19! Enjoy performances by Victoria Shaw and the sINgSPIRE Virtual Choir, and messages from Matt Rogers and other special guests. Registration will close one hour before the start of the event on November 19 (7 p.m. ET), so register soon to reserve your seat! https://events.cff.org/breathoflifecelebration

We are three weeks away for our Virtual 65 Roses Climb!🌹 Now is the time to follow up on your donation asks. 📧Email and ...
11/16/2020

We are three weeks away for our Virtual 65 Roses Climb!🌹 Now is the time to follow up on your donation asks. 📧Email and social media communication can be overwhelming, remember that people often intend to donate, but then forget to follow through. It’s okay to remind them! 📞

Click here to register today or log in to email your friends to donate to your team: https://fightcf.cff.org/site/TR?pg=entry&fr_id=8223

You are invited to our first national Breath of Life Celebration, Together: Curing CF on November 19 at 8 p.m. EST! Acro...
11/10/2020

You are invited to our first national Breath of Life Celebration, Together: Curing CF on November 19 at 8 p.m. EST! Across the country, members of the CF community will virtually come together and enjoy the Breath of Life Award presentation to Preston W. Campbell, III, MD, and special guest appearances from Matt Rogers, Victoria Shaw, the sINgSPIRE Virtual Choir, and more!

Reserve your seat today: https://events.cff.org/breathoflifecelebration

Fighting to make it to the leaderboard? There is still time...4 weeks exactly! Your fundraising efforts help us focus on...
11/09/2020

Fighting to make it to the leaderboard? There is still time...4 weeks exactly! Your fundraising efforts help us focus on the mission – to cure CF. Just last week the Foundation was able to award up to $2.4 million to Calithera Bioscience Inc. to advance a potential treatment to reduce infections in the lungs of people with CF. YAY!

Register today! https://fightcf.cff.org/site/TR?pg=entry&fr_id=8223

What an incredible #LatoDallasFinest event last night! If you missed the event, you can still take part in the silent au...
11/06/2020

What an incredible #LatoDallasFinest event last night! If you missed the event, you can still take part in the silent auction. Bidding will close at 8pm tonight! Help us reach our goal of $65,000 for CF!

Link to register: https://auction.cff.org/?idEvent=2866&flsr=1

We are 5 weeks from our 11th Annual (1st Virtual) 65 Roses Climb! Don’t forget that the key to building a team and a suc...
11/02/2020

We are 5 weeks from our 11th Annual (1st Virtual) 65 Roses Climb! Don’t forget that the key to building a team and a successful fundraising campaign is asking people you know for support AND thanking keeping your donors engaged throughout the process. Update your supporters on your efforts via email, social media, and regular communication -- and ask them to help spread the word. It’s important to let them know how your fundraising and training is going and when you hit milestones!

Haven’t registered yet? Take 30 seconds to register for free today at fightcf.cff.org/65rosesclimb

The Cystic Fibrosis Foundation Los Angeles Chapter has a new mailing address:6025 Santa Monica Blvd., #204 Los Angeles, ...
10/24/2020

The Cystic Fibrosis Foundation Los Angeles Chapter has a new mailing address:
6025 Santa Monica Blvd., #204
Los Angeles, CA 90038

While our address has changed, our telephone hasn’t – feel free to call us at any time. 323-939-0758.

It's #FinestFridays and we are 13 days from our LA to Dallas' Finest event on November 5th! Meet Jessica Bunge-Saldaña! ...
10/23/2020

It's #FinestFridays and we are 13 days from our LA to Dallas' Finest event on November 5th! Meet Jessica Bunge-Saldaña!

Jessica is a multidisciplinary entrepreneur that is invested in several blossoming Los Angeles organizations in the Commercial Cleaning, Hospitality & Real Estate sector. A dreamer from rural St. Clair, Missouri set out for the “Windy City” after grade school- Chicago, where she earned a Bachelor of Fine Arts in Fashion Design. Weeks after graduation day she packed her bags yet again for the “Sunny”

California where her search for work landed her in Los Angeles designing for an acclaimed Hollywood swimwear line. Months of self reflection and industry research she eventually convinced herself that she needed to find an industry that was recession proof if she was to make an impact on the world. After months of reflection and industry research she adjusted her perspective to find an opportunity that she felt was both recession proof but most importantly a business where she can provide jobs for those that need them most. In 2009, Jessica founded City Commercial Cleaning an organization that she has graciously grown to provide full time work for over 50 Families. With a growing thirst for real estate & hospitality she has since partnered with a local Los Angeles Latino owned hospitality group that launched Boyle Heights staple XELAS in 2018 and in Fall of 2020 NATIVO, a Mezcal Cocktail & Tapas Lounge in Highland Park, Ca.

You can support Jessica and donate to here Finest page: https://finest.cff.org/walkthepurplecarpet/jessicasaldana

Are you ready for LA to Dallas' Finest? Even though the event is free and virtual this year we have two ticket options t...
10/21/2020

Are you ready for LA to Dallas' Finest? Even though the event is free and virtual this year we have two ticket options to enjoy at home. Order a cocktail kit from Sourced Craft Cocktails 🍸 or charcuterie plate from Cheese To Table 🧀

*Please view the delivery parameters before purchasing*

Link to support our Finest honorees and order today! https://finest.cff.org/walkthepurplecarpet

Yes, that’s right – there are only 7 weeks until our Virtual 65 Roses Climb! Hosting a passion fundraiser is a great way...
10/19/2020

Yes, that’s right – there are only 7 weeks until our Virtual 65 Roses Climb! Hosting a passion fundraiser is a great way to help reach your team goal and show off your favorite hobby or interest. Need some ideas? We have plenty! We would love to talk to you about how to bring your passion fundraiser to life.

Email Amber at [email protected]. If you haven’t already, register for the climb and start your fundraising page today! http://fightcf.cff.org/65rosesclimb

10/15/2020
Richelle Meiss: Annual Fund and Get Salty!

Life for people with cystic fibrosis looks very different now than it did in 1989 when the gene was discovered. Advancements in care and therapies are allowing people with CF to dream of their futures and achieve milestones of all kinds – like getting married, having careers, and starting families. These incredible advancements were made possible because of support from people like you. And we aren’t done yet. We will not rest until CF stands for cure found.

A gift to Annual Fund will help us usher in even more progress as we enter a new era in CF. To give today, donate to: fightcf.cff.org/losangeles-anf

You can also join Richelle tomorrow night for Get Salty! Tickets can be purchased here: Getsaltycomedy.com

Without our passionate volunteers, and the support of our generous sponsors, AbbVie, Vertex, Genentech, and Gilead, Grea...
10/14/2020

Without our passionate volunteers, and the support of our generous sponsors, AbbVie, Vertex, Genentech, and Gilead, Great Strides would not be possible. Thank you for all that you do for the cystic fibrosis community. We 💜 you!

Meet our #LAtoDallasFinest honoree, Jacob Witten! ✨Ever since Jacob was ten years old and learned what CF meant, it has ...
10/13/2020

Meet our #LAtoDallasFinest honoree, Jacob Witten! ✨Ever since Jacob was ten years old and learned what CF meant, it has been his goal to find a cure. He has always had a passion for learning the math and science that it took to curing CF in the realm of possibility.

🌊After growing up in Los Angeles, Jacob moved east and majored in biophysics and math at Amherst College, working on new ways to study protein structure. Jacob received his Ph.D. from MIT in computational and systems biology studying the lung mucus layer that is disrupted in CF. He also worked on a side project to develop new antibiotics to treat lung infections.🧬

Currently, Jacob is a postdoc at MIT working on gene therapy and gene editing for the lung, with the goal of developing a durable cure for CF for patients like himself who cannot be treated by existing small molecule therapies.💜

When Jacob is not working in the lab he is running, reading, or (in less pandemic-afflicted time) playing volleyball 🏐

You can support Jacob by visiting his Finest page: https://finest.cff.org/walkthepurplecarpet/jacobwhttps

We are blown away when we see how much is raised through our 65 Roses Climb! Thank you for fundraising to find a cure fo...
10/12/2020

We are blown away when we see how much is raised through our 65 Roses Climb! Thank you for fundraising to find a cure for CF. We are eight weeks out and can’t wait to climb with you on Saturday, December 5th!

Register today: http://fightcf.cff.org/65rosesclimb

If you have any questions, reach out to Amber Walters at [email protected]

Meet your #LAtoDallasFinest honoree, Danielle Herrmann! ✨Danielle is a CF pharmacist at Valley Children’s Hospital in Ma...
10/12/2020

Meet your #LAtoDallasFinest honoree, Danielle Herrmann! ✨

Danielle is a CF pharmacist at Valley Children’s Hospital in Madera, CA.🏨 Danielle is originally from Itasca, IL and moved to Lawrence, KS to complete her undergrad and pharmacy school educations at the University of Kansas. From there, she moved to Madera, CA to start her pharmacy residency at Valley Children’s Hospital. 🧒

💜During her residency she was inspired by the people she worked with and the patients she served and applied to stay on as a clinical pharmacist at VCH. She had her hands in inpatient pharmacy, general medicine, oncology, and NICU before having the opportunity to join the VCH cystic fibrosis team in 2017. As soon as she got to know the VCH CF Team and the patients, she knew this was exactly where she wanted to be.🥼

Danielle enjoys helping to provide care for her CF patients, ensuring that the patients and families understand their medication regimens, and helping to combat any barriers to compliance. Outside of her passion for cystic fibrosis, Danielle swims competitively at Clovis Swim Club 🏊‍♀️ and qualified for the 2020 Olympic Trials which have been postponed to 2021. Danielle also enjoys spending time with family and friends and all sporting events.🏀⚾

Support Danielle by donating or purchasing a ticket to LA to Dallas Finest on November 5th: https://finest.cff.org/walkthepurplecarpet/DanielleHerrmann

Watch Sarah Silverman, Reggie Watts, Joel Kim Booster, Beth Stelling, and Tone Bell and more on the InCrowd virtual inte...
10/07/2020

Watch Sarah Silverman, Reggie Watts, Joel Kim Booster, Beth Stelling, and Tone Bell and more on the InCrowd virtual interactive stage on Oct 16!

Buy your tickets starting at $35 for GA and $100 for VIP now to see these great comedians LIVE! It's going to make for a great evening!

Purchase tix TODAY! https://finest.cff.org/getsaltycomedy

We are officially 9 weeks away from the 2020 Virtual 65 Roses Climb. Have you registered yet? Registration is open: http...
10/06/2020

We are officially 9 weeks away from the 2020 Virtual 65 Roses Climb. Have you registered yet?

Registration is open: https://fightcf.cff.org/65rosesclimb. Double your impact today through matching gifts and encourage your donors to do the same!

To find out more information about the matching gift program or the event contact [email protected]

Happy Monday! Meet Aphril Santa Ana, one of our #LAtoDallasFinest honorees.Aphril started her career in Women's Health i...
10/05/2020

Happy Monday! Meet Aphril Santa Ana, one of our #LAtoDallasFinest honorees.

Aphril started her career in Women's Health in 2012. She had the honor to support women going through IVF, labor & postpartum. Currently as a Perinatal registered nurse, Aphril supports women who have high risk pregnancies, women in labor and their immediate postpartum stage. Paying extra attention to women’s needs as they enter different stages in their fertility journey, allowed Aphril to understand the emotional, mental & physical demands, thus inspiring her to start her business, For You.

For You is designed to support individuals who are seeking to start a family from preconception all the way through parenthood with educational platforms, concierge services and creative products as they go through each step. Their vision is to help spread awareness of women's health education and help serve those who are going through a transitional time in their lives.

On her off duty days, Aphril likes to listen to music, cook & eat and spend quality time with the dearest people in her life. She takes advantage of spending time in nature and traveling. It amplifies her attitude of gratitude and keeps her grounded.

To support Aphril, visit her Finest page: https://finest.cff.org/walkthepurplecarpet/aphrilsantaana

For today's #FinestFridays spotlight we have Antonia Carlotta! ✨Antonia is the creator and star of “Universally Me,” a Y...
10/02/2020

For today's #FinestFridays spotlight we have Antonia Carlotta! ✨

Antonia is the creator and star of “Universally Me,” a YouTube series about Universal Studios and Hollywood history.🎬 She can be seen in the documentary feature “Carl Laemmle,” and the upcoming documentary series “Out Where the West Begins.” Antonia’s great uncle, Carl Laemmle, founded Universal Studios 🌎, and in addition to that, saved hundreds of Jewish families from the Holocaust by sponsoring them to come to the United States, and providing them homes and jobs at Universal. Antonia hopes her work will help honor his legacy, and inspire others to take action to make a positive difference in people’s lives.

When she’s not working on Universally Me, Antonia loves playing dodgeball and poker.👩‍🎓 She is a graduate of Pepperdine with a degree in Political Science. She has worked for the US Census Bureau, President Obama’s re-election campaign, and currently as a Senior Data Analyst for the Federal Reserve Bank. 🏦

Antonia is so excited to be honored with LA’s Finest, and hopes to make the Cystic Fibrosis Foundation proud. 💜

You can support & donate to Antonia's Finest page: https://finest.cff.org/walkthepurplecarpet/antoniacarlotta

Join us and ROSE UP! ROSE UP is a new virtual fundraising event created and led by adults with cystic fibrosis to bring ...
10/01/2020

Join us and ROSE UP! ROSE UP is a new virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to ROSE UP and support our mission. Anyone in this amazing CF community who wants to ROSE UP for a cure is welcome!

What does it mean to ROSE UP? 🌹
🔹 JOIN – once you register you are in!
🔹 ENCOURAGE others to ROSE UP
🔹 SHARE why you ROSE UP on social media using #ROSEUPCF
🔹 DONATE any amount big or small
🔹 ROSE UP on October 2!

How will you ROSE UP? Sign up to help reach our goal of 650 community member registrants from all 50 states participating in a day of fundraising and story sharing on October 2.
Link: http://on.cff.org/roseup

We are 10 weeks away from the 2020 Virtual 65 Roses Climb! Let’s celebrate by recruiting 2 members to your team. Why 2 m...
09/28/2020

We are 10 weeks away from the 2020 Virtual 65 Roses Climb! Let’s celebrate by recruiting 2 members to your team. Why 2 members? 2 represent the average number of hours a person with CF spends on daily therapies.

To learn more about the 2020 65 Roses Climb and how you can collect this year’s 65 Roses bib, register at https://fightcf.cff.org/65rosesclimb

Introducing the amazing nurse, Marine for #FinestFridays! Marine Kupalyan, was born and raised in Burbank, CA. She went ...
09/25/2020

Introducing the amazing nurse, Marine for #FinestFridays!

Marine Kupalyan, was born and raised in Burbank, CA. She went to USC for her undergraduate degree in biology, and decided to go back to school for nursing at Mount Saint Mary’s University. Marine always had a passion for helping others, which stemmed her career in nursing. She started working as a registered nurse at Children’s Hospital Los Angeles, and is currently working as a clinical nurse for UCLA Mattel Children’s Hospital Pediatric Pulmonary and CF Care Center.

Marine enjoys working alongside CF patients and their families. She is passionate about projects that better her patients quality of care. “I hope to be an integral part of the CF Care Center at UCLA. I am constantly learning and applying myself to further improve the systems of healthcare and how we treat our patients.” -Marine.

You can support Marine by visiting her Finest page: https://finest.cff.org/walkthepurplecarpet/marine

It's #finestfridays! Today we have two amazing honorees to highlight. First up is, Mark Tapanes. "Hello my name is Mark ...
09/25/2020

It's #finestfridays! Today we have two amazing honorees to highlight. First up is, Mark Tapanes.

"Hello my name is Mark Tapanes and I am currently living in Newport Beach, CA with my wife, Megan, & cat, Clyde. I was born in Los Angeles and moved to Orange County in Junior High. After High School, I went to college at Loyola Marymount University and studied Business with an emphasis on Marketing. After college, I went into technology sales working at a handful of startups. The most successful concluding in an acquisition by LinkedIn in 2016. After spending a few years at LinkedIn I transitioned to a role at Salesforce where I am currently in an RVP role.

Outside of work, I enjoy traveling with my family & friends, going to concerts, and rooting on my favorite sports team (Lakers & Chargers). I am an avid record collector with over 600 vinyl's in a variety of genres ranging from Classic Rock to Hip Hop."

To support Mark visit his Finest page: https://finest.cff.org/walkthepurplecarpet/MarkTapanes

09/23/2020
Meet Maddie- Annual Fund 2020

Meet, Maddie Madrid!

Maddie is a local cystic fibrosis patient who never takes the ability to take a deep breath for granted, loves experiencing the beach with her daughter, and a relentless fighter in the mission for a cure. We invite you to hear Maddie share her story below, and why she supports the Cystic Fibrosis Foundation. Although drugs like Trikafta improve the lives of people with cystic fibrosis, there is still no cure. We have not stopped in our mission to find a cure for 100% of people with cystic fibrosis.

Please consider making a donation today: fightcf.cff.org/losangeles-anf.

Address

4929 Wilshire Blvd, Ste 760
Los Angeles, CA
90010

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Los Angeles Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

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An exciting announcement for CF parents and CF'ers: I'm a CF parent and I've created a FB page... "CF ZoomConnect"... for the purpose of connecting CF parents and CFers on a weekly Zoom call (Sunday evenings) to build strong and supportive relationships. The call will include breakout rooms of up to 6 or 8 people, to allow for effective conversation and relationship building. If you are a CF'er or a CF'er parent, I invite you to join us. :) https://www.facebook.com/groups/2863363707105877/
Thank you to CFF - Los Angeles for all you do!
My name is Danielle and I am a student attending UCLA. I was so inspired by the individuals the I met at the Cystic Fibrosis Foundation's Great Strides Santa Monica event last year that I am creating a hypothetical product for individuals with CF in my entrepreneurial class. I am looking to have individuals with CF and/or family members answer a 4-minute online survey about their experiences to better illuminate possible inventions that may help those with CF live life more comfortably. I would greatly appreciate if you would take the time to answer this quick survey: https://goo.gl/forms/kMDPAMTDcikJVwkF2 Thank you!
Is there a branch in the Coachella Valley? Palm Springs- Rancho Mirage- Palm Desert - LaQuinta - Indio
Benefitting cystic fibrosis
A fiction suspense book that just came out a month ago has a character in it with CF that really brings awareness to CF affects families. The proceeds of the book are being donated to the CF Foundation. It's called The Naked Block and can be found on Amazon or Kindle. It's receiving 4 and 5-star reviews, so hope everyone gets a chance to order the book to raise money for CF and to enjoy a comical and suspenseful book at the same time.
Susan Thau, PhD., and I are offering a 1 day workshop, 9/23, in L.A. for couples whose child has a serious medical condition. We know from experience just how stressful this is on the couple. As psychologists who practice Emotionally Focused Therapy for Couples, we can teach couples the basics about emotional connection and health, and help them strengthen their bond with each other as an antidote to dealing with their child's condition. For more info, please contact me: [email protected] or (818) 888-7923.
My colleague and I are offering a 1 day workshop on 9/23 in L.A. for couples whose child has a serious medical condition. We know from personal experience the emotional stress of this situation. As psychologists who practice Emotionally Focused Therapy for couples, we want to help couples learn communication skills that strengthen their bond as an antidote to dealing with their child's condition. For more information, contact me at: [email protected] or (818) 888 7923
Why won't you enjoy the benefits of this great ancient therapy at home? Now you can with our new AirSalter https://www.facebook.com/healovation http://www.newsmax.com/…/salt-therapy…/2017/07/21/id/803040/