Cystic Fibrosis Foundation - Southern California Los Angeles Chapter

Cystic Fibrosis Foundation - Southern California Los Angeles Chapter Welcome to the official page of the Los Angeles Chapter! The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.

Cystic Fibrosis Foundation - Los Angeles Chapter 4929 Wilshire Blvd. Suite 760 Los Angeles, CA, 90010

Cystic Fibrosis Foundation - Los Angeles Chapter 4929 Wilshire Blvd. Suite 760 Los Angeles, CA, 90010

Mission: The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Photos from Cystic Fibrosis Foundation - Southern California Los Angeles Chapter's post
03/04/2021

Photos from Cystic Fibrosis Foundation - Southern California Los Angeles Chapter's post

How amazing was last week's CF Fighter 💪 session? Well there's more where that came from! Join us tomorrow and hear from...
03/01/2021

How amazing was last week's CF Fighter 💪 session? Well there's more where that came from! Join us tomorrow and hear from 3 CF Fighters on balancing their career 📈 and their health 💊! You won't want to miss this discussion, so make sure you're registered.

https://tomorrowsleaders.cff.org/track1/

Rare Disease Day is Sunday, February 28. Show your rare or help raise awareness for cystic fibrosis by updating your pro...
02/26/2021

Rare Disease Day is Sunday, February 28. Show your rare or help raise awareness for cystic fibrosis by updating your profile photo with one of our new Facebook frames.

Search "Cystic Fibrosis Foundation" to find both options for updating your profile picture frame for Rare Disease Day.

Rare Disease Day is Sunday, February 28. Show your rare or help raise awareness for cystic fibrosis by updating your profile photo with one of our new Facebook frames.

Search "Cystic Fibrosis Foundation" to find both options for updating your profile picture frame for Rare Disease Day.

Meet your Great Strides Yearbook Staff! They are so excited to bring you this year’s Stronger Together Yearbook! 📸Moment...
02/24/2021

Meet your Great Strides Yearbook Staff! They are so excited to bring you this year’s Stronger Together Yearbook!

📸Moments worth remembering are found in the yearbook, right? We will be bound together in our Stronger Together Yearbook from challenges you participate in to shout-outs you don’t want to forget.

🌟Shine in the yearbook and register for Great Strides today! cff.org/great_strides

Email photos you would like to share to Natalie, [email protected]

There is still time to register for our California Grampions event and make your voice heard! Learn about engaging ways ...
02/22/2021

There is still time to register for our California Grampions event and make your voice heard! Learn about engaging ways to inspire action and shape public policy within the CF Community TOMORROW! Join us for an informative discussion on CF Advocacy 101 on Tuesday, February 23 at 5pm.

Join us: https://cff.zoom.us/meeting/register/tJMrdeGopjIjGNK-LrFV9x_vW11Y-RU-oO62

Do you have questions about what to expect when living with advanced lung disease, considering a transplant, preparing f...
02/22/2021

Do you have questions about what to expect when living with advanced lung disease, considering a transplant, preparing for transplant, or life post-transplant? Join us February 27 for CF MiniCon: Transplant, a free, online educational event for people with cystic fibrosis, their family members, and caregivers age 16 and older to connect with others going through every stage of the lung transplant journey.

Register today! http://on.cff.org/MiniConTransplant2021

Our next Tomorrow's Leaders learning track is a week away! If you missed the first session, join us for the CF Fighter P...
02/18/2021

Our next Tomorrow's Leaders learning track is a week away! If you missed the first session, join us for the CF Fighter Panel on 2/25. 💜

Hear from 4️⃣ CF fighters as they each share their unique journey with CF.

*Link to register* https://tomorrowsleaders.cff.org/track1/

"We don't make mistakes, just happy little accidents." - Bob RossJoin Tomorrow’s Leaders for a virtual paint night on 2/...
02/18/2021

"We don't make mistakes, just happy little accidents." - Bob Ross

Join Tomorrow’s Leaders for a virtual paint night on 2/25! We’ll be following along to a lesson by Bob Ross whilst sipping cocktails and enjoying one another’s distant company.🎨

Register today! https://tomorrowsleaders.cff.org/paintnightwithbobross

02/17/2021
Great Strides 2021 Ambassador Message

We feel so honored to have Candice Varner, a CF mother, as our 2021 Great Strides Ambassador. Thank you, Candice and Audrey for your Great Strides welcome message. By her daughter's side in the hospital, Candice is still advocating and fundraising to find a cure. 💜💪

You can join her in the fight and register for Great Strides.
www.cff.org/greatstrides

👩‍❤️‍👨Our Development Director, Amber and her son, Dominic are asking you to spread a little love this Valentine’s Day w...
02/12/2021

👩‍❤️‍👨Our Development Director, Amber and her son, Dominic are asking you to spread a little love this Valentine’s Day weekend. It’s ValenTEAMs week, and we want you to be our Valentine by registering for great strides.

❤️Share the LOVE and tell us why you stride by registering for a walk near you. cff.org/great_strides

📧 Email pictures to [email protected] to be featured in our Stronger Together Yearbook. ❤️

Jessica from the LA office is excited to begin fundraising for the 2021 Great Strides season with her newly formed team ...
02/11/2021

Jessica from the LA office is excited to begin fundraising for the 2021 Great Strides season with her newly formed team 🌿🍃! Join our ValenTeams week to sign up your team and begin recruiting members today!

❤️Share the LOVE and tell us why you stride by registering for a walk near you. cff.org/great_strides

📧 Email pictures to [email protected] to be featured in our Stronger Together Yearbook. ❤️🌿

Natalie from the LA office loves her dog, Lucy 🐶 but she also loves raising money and awareness for the @cff_losangeles....
02/10/2021

Natalie from the LA office loves her dog, Lucy 🐶 but she also loves raising money and awareness for the @cff_losangeles. We at the chapter, are so excited to announce Natalie is celebrating her 4th anniversary at the CF Foundation and is spreading the love by starting her Great Strides campaign. Natalie has raised over $300 in two days. 💜

Share the LOVE and tell us why you stride by registering for a walk near you. cff.org/great_strides

📧 Email pictures to [email protected] to be featured in our Stronger Together Yearbook. ❤️

Valentine's day is just around the corner and we want all our ValenTEAMS to register and share the LOVE! Tell us why you...
02/09/2021

Valentine's day is just around the corner and we want all our ValenTEAMS to register and share the LOVE! Tell us why you walk and share your photos with us to be featured in the Stronger Together Yearbook! 🥰

Share the love today! cff.org/great_strides
Email: [email protected] with your photos

You can now download the new app, Fight CF on your iPhone or Android! Help us make CF stand for Cure Found! ✨To register...
02/08/2021

You can now download the new app, Fight CF on your iPhone or Android! Help us make CF stand for Cure Found!

✨To register your team, join a team, or make a donation, please head to: cff.org/great_strides

Registration is now open for Great Strides, Xtreme Hike, CF Cycle for Life, and CF Climb! Show the cystic fibrosis commu...
02/05/2021

Registration is now open for Great Strides, Xtreme Hike, CF Cycle for Life, and CF Climb! Show the cystic fibrosis community how you’re virtually participating this year by updating your profile photo with one of our new Facebook frames.

Looking for another frame? Search for the "Cystic Fibrosis Foundation" to see additional options available for updating your profile picture frame.

Registration is now open for Great Strides, Xtreme Hike, CF Cycle for Life, and CF Climb! Show the cystic fibrosis community how you’re virtually participating this year by updating your profile photo with one of our new Facebook frames.

Looking for another frame? Search for the "Cystic Fibrosis Foundation" to see additional options available for updating your profile picture frame.

Do you have questions about what to expect when living with advanced lung disease, considering a transplant, preparing f...
01/29/2021

Do you have questions about what to expect when living with advanced lung disease, considering a transplant, preparing for transplant, or life post-transplant? Join us February 27 for CF MiniCon: Transplant, a free, online educational event for people with cystic fibrosis, their family members, and caregivers age 16 and older to connect with others going through every stage of the lung transplant journey.

Enjoy keynotes, panels featuring members of the CF community and clinicians, group chats, and small-group video breakouts to learn about post-transplant care, mental health across the transplant journey, the patient and caregiver relationship, and more.

Register today: http://on.cff.org/MiniConTransplant2021

✨Congratulations to Dr. Richard Belkin and Cottage Hospital for the Care Center Award in 2020! 🎓Richard Belkin, MD, MSCE...
01/28/2021

✨Congratulations to Dr. Richard Belkin and Cottage Hospital for the Care Center Award in 2020!

🎓Richard Belkin, MD, MSCE is a Board Certified Pulmonary and Critical Care Medicine Physician, the Medical Director of the Santa Barbara Cottage Hospital adult Cystic Fibrosis Program and Managing Partner at Santa Barbara Pulmonary Associates.

Thank you for all that you do to care for the CF community. 💜

✨Tonight at 5 p.m. PST join us for our National Annual Meeting to hear from Marc Ginsky, chief operating officer; Bruce ...
01/28/2021

✨Tonight at 5 p.m. PST join us for our National Annual Meeting to hear from Marc Ginsky, chief operating officer; Bruce Marshall, MD, EVP and chief medical officer; Bill Skach, MD, EVP and chief scientific officer; and Michael Boyle, MD, our president and CEO. Together, we will celebrate our volunteers, highlight the progress made in 2020 and look forward to what 2021 holds in store. 💜

Join us ➡️ http://on.cff.org/National-Annual-Meeting

✨Congratulations to the UCLA Care Team for the Outstanding Care Center Partnership Award! The UCLA care center received ...
01/28/2021

✨Congratulations to the UCLA Care Team for the Outstanding Care Center Partnership Award!

The UCLA care center received this award at the 2020 North American Cystic Fibrosis Conference, which took place virtually this past fall. Dr. Douglas Li and the UCLA staff have shown exemplary support to the cystic fibrosis community amid the COVID-19 pandemic; through telemedicine, providing resources for home spirometry tests and acting as strong sources of information in regard to the vaccination process. Dr. Li also sits on the LA Chapter's advisory board. We are so grateful to work with UCLA!💜🐻

✨Congratulations to the Lampert Family as our Hero of Hope for 2020!Sharon and Hal Lampert have generously supported our...
01/27/2021

✨Congratulations to the Lampert Family as our Hero of Hope for 2020!

Sharon and Hal Lampert have generously supported our California Winemasters event for years. They have co-chaired the event for 30 years and played a major role in helping the CF Foundation raise almost $33 million.🍷

💜Join us in congratulating The Lampert Family in the comments and mark your calendars for our National Annual Meeting TOMORROW! https://engage.cff.org/annualmeeting/

Congratulations to the Armato Family as our Outstanding CF Advocate for 2020! 💜 Stacey Armato is a wife and mother of th...
01/26/2021

Congratulations to the Armato Family as our Outstanding CF Advocate for 2020!
💜 Stacey Armato is a wife and mother of three children, Lorenzo, Giuliana and Massimo. Massi is 5 and has cystic fibrosis. Stacey is a City Councilmember in Hermosa Beach and works as a Director at Inceptiv.

She co-chairs California Winemasters and serves on the boards of BreastfeedLA, California Women’s Law Center, the UCLA Parent Advisory Council, and Independent Cities Association. With a passion for advocacy work, she has spent the last few years attending March on the Hill for the CF Foundation, and serves as the Legislative Chair for California Contract Cities.

✨Join us in congratulating The Armato Family in the comments and mark your calendars for our National Annual Meeting on January 28! https://engage.cff.org/annualmeeting/

2021 Great Strides websites are live! ✨To register your team, join a team, or make a donation, please head to:  cff.org/...
01/25/2021

2021 Great Strides websites are live! ✨To register your team, join a team, or make a donation, please head to: cff.org/great_strides

Help us reach our goal of registering 30 teams by Tuesday, Jan 26th and the CFF LA Chapter staff will share their senior photos!🎓

Today is Tomorrow’s Leaders Day! Why should you join this dedicated group of young professionals? 1️⃣ Make a Difference:...
01/23/2021

Today is Tomorrow’s Leaders Day! Why should you join this dedicated group of young professionals?

1️⃣ Make a Difference: Raise awareness for cystic fibrosis and be a part of the generation that helps find a cure.
2️⃣ Connect With Others: Join the CF Foundation's young professional community and get to know like-minded individuals ages 21+ both locally and from across the country.
3️⃣ Learn & Grow: Access to five nationwide personal and professional development tracks, local networking, and leadership opportunities.

To learn more visit: https://www.cff.org/Get-Involved/Give-to-the-Cause/Tomorrows-Leaders/
or email Natalie at [email protected]

✨Congratulations to the Dyne Family, for receiving the Gifts For A Cure Award in 2020! The Dyne Family has played a sign...
01/22/2021

✨Congratulations to the Dyne Family, for receiving the Gifts For A Cure Award in 2020! The Dyne Family has played a significant role in our Major Gifts program in support of the Nonsense Rare Mutations Initiative (NRMI) ; acting as strong advocates as their son Jacob was diagnosed with a rare mutation at a young age.

"Jake was diagnosed with cystic fibrosis at the young age of 14 months. He had chronic digestion issues and a cough. Three weeks after Jake was diagnosed, after speaking with another CF mom who lived in Los Angeles and was currently holding fundraisers, she suggested we start a fundraisers in the San Fernando Valley. That following week, we had our first fundraiser at our home and raised over $30K. After that fundraiser, Jake's Ladder was officially an entity of the CFF, and we haven't looked back since. To date, we have raised over 2 million dollars, and we will continue to fundraise until a cure is found for Jake and others living with the rare/ nonsense mutation."💜

🌹 Join us in congratulating The Dyne Family in the comments And mark your calendars for our National Annual Meeting on January 28! https://engage.cff.org/annualmeeting/

2021 Great Strides websites are live, HOORAY! Help us reach our goal of registering 30 teams by Tuesday, Jan 26th and th...
01/21/2021

2021 Great Strides websites are live, HOORAY! Help us reach our goal of registering 30 teams by Tuesday, Jan 26th and the CFF LA Chapter staff will share their senior photos!🎓

✨To register your team, join a team, or make a donation, please head to: cff.org/great_strides

We would like to recognize, Richelle Meiss for receiving the Tomorrow's Leaders Award at the Volunteer Leadership Confer...
01/20/2021

We would like to recognize, Richelle Meiss for receiving the Tomorrow's Leaders Award at the Volunteer Leadership Conference (VLC) in 2020. We were not able to come together to celebrate Richelle due to Covid-19, but we are so proud of all her hard work over the years with the LA Chapter and her success with Get Salty Comedy Show.

Tomorrow’s Leaders Day is almost here! On January 23, we’ll give you 1-2-3 reasons to join the Foundation’s young professionals group, Tomorrow’s Leaders. This dedicated group of adults ages 21+ is committed to finding a cure for cystic fibrosis, while growing personally and professionally, and you can join this winning team.
Email Natalie to learn more, [email protected].

Learn more: https://www.cff.org/Get-Involved/Give-to-the-Cause/Tomorrows-Leaders/

Congratulations to Ben Calvert,  as our Tomorrow's Leaders Award for 2020! The Tomorrow Leaders Award goes to a young pr...
01/19/2021

Congratulations to Ben Calvert, as our Tomorrow's Leaders Award for 2020! The Tomorrow Leaders Award goes to a young professional who furthers fundraising and/or awareness for the CF community. 💜

✨Ben Calvert was born in the UK and grew up in a town called Doncaster in Yorkshire. At the age of 20, He moved to the south of the UK to attend the University of Hertfordshire, to study Pharmacology as an undergrad. He Graduated with honors in 2011 and began his Master’s course in Clinical Research at a small, little known university called Cranfield University in the UK. Whilst at Cranfield, Ben developed an interest in cell biology and joined a research team studying the link between diabetes and Alzheimer’s disease. After graduating with his Master’s in 2012, Ben joined the UK’s premier pharmaceutical company, GlaxoSmithKline as a junior research scientist, investigating respiratory inflammation and conducting research to find new treatments for inflammatory lung diseases. He used this research to submit a thesis for his doctorate which was awarded in 2017. Ben then joined Professor Amy Ryan’s Lab at USC where he has been working ever since, developing laboratory models to investigate Cystic Fibrosis. Ben was also a Finest honoree in 2020 and an active member of the Tomorrow's Leaders group. You can always find Ben working hard in his lab whenever Tomorrow's Leaders have a virtual meeting.

📢Tomorrow’s Leaders Day is almost here! On January 23, we’ll give you 1-2-3 reasons to join the Foundation’s young professionals group, Tomorrow’s Leaders. This dedicated group of adults ages 21+ is committed to finding a cure for cystic fibrosis, while growing personally and professionally, and you can join this winning team.

We’re combining the spring Great Strides walks (Greater Los Angeles [ combined Santa Monica and LA], Santa Clarita, Fres...
01/19/2021

We’re combining the spring Great Strides walks (Greater Los Angeles [ combined Santa Monica and LA], Santa Clarita, Fresno, Bakersfield, and Ventura) to create one grand, VIRTUAL event on Saturday, May 15th! We are so excited to come together virtually and to continue making incredible strides as a community. The Great Strides walks have always been about connection, support, and community – and we plan to keep this vibe going! 💜

The websites are LIVE! To register your team, join a team, or make a donation, please head to the link: https://fightcf.cff.org/site/SPageServer?pagename=143_gs_landing_page

Although we are walking as one community, you will still register at your usual walk site.

✨Congratulations to the Varner Family from Santa Clarita, CA as our Outstanding CF Advocate for 2020! 💜The Varner Family...
01/15/2021

✨Congratulations to the Varner Family from Santa Clarita, CA as our Outstanding CF Advocate for 2020!

💜The Varner Family began their journey with CF when their daughter, Audrianna, was diagnosed 3 years ago. Dad - Chris, Mom - Candice, Brothers - Austin and Colton and Sisters - Piper and Darcie all vowed at that moment that her fight was OUR fight. Being adopted, Audrianna’s diagnosis came as a shock coupled with confusion and concern. Our friends, family and the entire community circled around us as we joined forces with the Cystic Fibrosis Foundation to help raise awareness and funds for a cure. Audrianna is a lover of unicorns and West Ranch football, so she aptly named her team Audrey’s Unicorns and has even been able to convince her dad’s football team to wear unicorn shirts and walk for a cure with her. In 3 years, we have raised over $25,000 and are so encouraged and excited to continue until there is a cure for all.🦄

Join us in congratulating The Varner Family in the comments And mark your calendars for our National Annual Meeting on January 28! https://engage.cff.org/annualmeeting/

Address

6025 Santa Monica Blvd., #204
Los Angeles, CA
90038

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Los Angeles Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

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Comments

An exciting announcement for CF parents and CF'ers: I'm a CF parent and I've created a FB page... "CF ZoomConnect"... for the purpose of connecting CF parents and CFers on a weekly Zoom call (Sunday evenings) to build strong and supportive relationships. The call will include breakout rooms of up to 6 or 8 people, to allow for effective conversation and relationship building. If you are a CF'er or a CF'er parent, I invite you to join us. :) https://www.facebook.com/groups/2863363707105877/
Thank you to CFF - Los Angeles for all you do!
My name is Danielle and I am a student attending UCLA. I was so inspired by the individuals the I met at the Cystic Fibrosis Foundation's Great Strides Santa Monica event last year that I am creating a hypothetical product for individuals with CF in my entrepreneurial class. I am looking to have individuals with CF and/or family members answer a 4-minute online survey about their experiences to better illuminate possible inventions that may help those with CF live life more comfortably. I would greatly appreciate if you would take the time to answer this quick survey: https://goo.gl/forms/kMDPAMTDcikJVwkF2 Thank you!
Is there a branch in the Coachella Valley? Palm Springs- Rancho Mirage- Palm Desert - LaQuinta - Indio
Benefitting cystic fibrosis
A fiction suspense book that just came out a month ago has a character in it with CF that really brings awareness to CF affects families. The proceeds of the book are being donated to the CF Foundation. It's called The Naked Block and can be found on Amazon or Kindle. It's receiving 4 and 5-star reviews, so hope everyone gets a chance to order the book to raise money for CF and to enjoy a comical and suspenseful book at the same time.
Susan Thau, PhD., and I are offering a 1 day workshop, 9/23, in L.A. for couples whose child has a serious medical condition. We know from experience just how stressful this is on the couple. As psychologists who practice Emotionally Focused Therapy for Couples, we can teach couples the basics about emotional connection and health, and help them strengthen their bond with each other as an antidote to dealing with their child's condition. For more info, please contact me: [email protected] or (818) 888-7923.
My colleague and I are offering a 1 day workshop on 9/23 in L.A. for couples whose child has a serious medical condition. We know from personal experience the emotional stress of this situation. As psychologists who practice Emotionally Focused Therapy for couples, we want to help couples learn communication skills that strengthen their bond as an antidote to dealing with their child's condition. For more information, contact me at: [email protected] or (818) 888 7923
Why won't you enjoy the benefits of this great ancient therapy at home? Now you can with our new AirSalter https://www.facebook.com/healovation http://www.newsmax.com/…/salt-therapy…/2017/07/21/id/803040/